Health care decisionmaking should prioritize patient preferences, yet often third parties make decisions for patients. Physicians, payers, and caregivers may all play a role in decisionmaking. The IMI PREFER initiative aims to guide the incorporation of patient preferences into decisions. Their comprehensive report offers recommendations for integrating patient preferences effectively.
Key Takeaways:
When to Incorporate Patient Preferences:

Cases Where Patient Preferences are Less Useful:
If endpoints and tradeoffs are well-known with few uncertainties, patient preference surveys may have less value.

Steps for Conducting Patient Preference Studies:

Preference Exploration and Methodologies:
Qualitative methods are crucial for exploring patient perspectives early in the medical product lifecycle.


Quantifying Preferences:
Different methods for quantifying preferences exist, offering a way to evaluate and understand patient preferences.


For more detailed information, refer to the recommendations report here.