Growing up, I had a few quirks and fears as a child, such as being afraid of heights and avoiding stepping on cracks in floor tiles. I blinked excessively and was often labeled as “particular.” But when I turned 8, I developed a persistent urge to stretch my neck, like a giraffe reaching for leaves. This sensation would not go away until I gave in, leading my parents to seek medical help. After being initially dismissed, I was eventually diagnosed with chronic motor tic disorder caused by an underlying anxiety and OCD. I was put on medication to manage my symptoms, which continued to worsen over the years.
After years of struggling, I was finally diagnosed with Tourette syndrome 14 years after my symptoms first appeared. This diagnosis brought me immense relief, as it explained my uncontrollable movements and sounds. I no longer felt the pressure to be “perfect” or “normal,” knowing that my condition was beyond my control.
Navigating life with Tourette’s has its challenges, but knowing the reason behind my tics has given me confidence. I no longer feel ashamed or embarrassed by my tics, embracing them as a part of who I am. Understanding Tourette’s has allowed me to educate others about my condition without fear or hesitation.
Many women with Tourette’s, like me, are often underdiagnosed or misdiagnosed due to differing symptoms and societal misconceptions. Symptoms in women may present differently than in men, leading to delayed diagnosis and treatment. Additionally, the stress and responsibilities that many women face can exacerbate tics and other Tourette-related symptoms.
Stigma and misconceptions surrounding Tourette’s contribute to the lack of awareness and understanding of the condition. The portrayal of Tourette’s in popular culture as the “cussing disease” perpetuates stereotypes and hinders proper diagnosis and treatment. Education and awareness are crucial in helping women with Tourette’s receive timely and accurate support.
