Death is a part of life that we all must face, but the journey towards it can be vastly different depending on the disease. Julie McFadden, a hospice nurse in California, shares her insights on the most and least agonizing ways to die based on her extensive experience in end-of-life care. Her observations shed light on the stark differences in terminal illnesses.
The Worst: ALS (Amyotrophic Lateral Sclerosis)
ALS, also known as Lou Gehrig’s disease, tops the list of the most challenging diseases to die from according to McFadden. This neurodegenerative disease progressively deteriorates neurons controlling voluntary muscles, leading patients to lose basic functions like walking, talking, swallowing, and eventually breathing. The disease is fatal, spanning from a few years to decades, often culminating in a slow and painful decline. McFadden describes it as particularly cruel due to the loss of independence and the physical suffering.
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The Worst: Glioblastoma
Glioblastoma, an aggressive brain cancer, is another disease McFadden considers one of the most challenging to die from. This cancer rapidly destroys brain tissue, causing severe neurological impairments such as seizures, memory loss, and intense headaches. Treatment options are limited, and survival rates are low, with most patients living only 12 to 18 months after diagnosis. The swift and devastating impact on physical and mental health makes glioblastoma particularly hard on patients and their families.
The Emotional Toll on Families
The emotional toll on families witnessing their loved ones deteriorate from diseases like ALS and glioblastoma is profound. Comments on social media echo McFadden’s observations, with individuals sharing their personal stories. For example, one commenter describes ALS as a cruel disease after losing their father to it. Another recounts the heartbreaking decline of a loved one due to glioblastoma.
The Best: End-Stage Kidney Disease
On the other end of the spectrum, McFadden identifies end-stage kidney disease as a more peaceful way to pass away. Chronic kidney disease leads to a gradual loss of kidney function, often requiring dialysis. However, when patients choose to discontinue dialysis, the end comes relatively peacefully. Patients typically drift into sleep and pass away within a week, making it a more tranquil process.
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The Dignity of a Peaceful Passing
Families have found comfort in the peaceful nature of end-stage kidney disease. Comments on McFadden’s insights highlight the serene and loving atmosphere in which their loved ones passed on. The ability to bid farewell and manage the end-of-life process on their terms brings closure and tranquility, often absent in more aggressive diseases.
The Role of Hospice Care
Hospice care is essential in symptom management and providing comfort to those nearing the end of life. McFadden emphasizes the importance of compassionate care and tailored approaches for different diseases. Understanding the nuances of each illness enables hospice nurses to offer better support to patients and their families.
Conclusion
Julie McFadden’s perspectives on the best and worst diseases to die from offer valuable insights into the varied experiences of terminal illnesses. While diseases like ALS and glioblastoma pose significant challenges and pain, end-stage kidney disease allows for a more serene and dignified passing. These reflections underscore the crucial role of hospice care and ongoing support for patients and families during such critical times.
Read More: 7 Signs That Death May Be Near in Someone With Dementia
Sources
- “End of life nurse reveals the ‘best’ and ‘worst’ diseases to die from.” Daily Mail. Joshu Health. June 13, 2024.
- “End of life nurse reveals the ‘worst’ (and ‘best’) diseases to die from.” Metro UK.
Alice Giddings. June 14, 2024.
